Transitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling.

TitleTransitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling.
Publication TypeJournal Article
Year of Publication2021
AuthorsZmora, R, Statz, TL, Birkeland, RW, McCarron, HR, Finlay, JM, Rosebush, CE, Gaugler, JE
JournalJ Aging Health
Volume33
Issue1-2
Pagination133-146
Date Published2021 Jan
ISSN1552-6887
KeywordsAged, Alzheimer Disease, Caregivers, Counseling, Dementia, Family, Female, Health Personnel, Humans, Long-Term Care, Male, Middle Aged, Patient Acceptance of Health Care, Stress, Psychological
Abstract

Previous analyses of interventions targeting relationships between family caregivers of people with Alzheimer's disease and related dementias and residential long-term care (RLTC) staff showed modest associations with caregiver outcomes. This analysis aimed to better understand interpersonal and contextual factors that influence caregiver-staff relationships and identify targets for future interventions to improve these relationships. Using a parallel convergent mixed methods approach to analyze data from an ongoing counseling intervention trial, descriptive statistics characterized the sample of 85 caregivers and thematic analyses explored their experiences over 4 months. The findings illustrated that communication, perceptions of care, and relationships with staff are valued by family caregivers following the transition of a relative with dementia to RLTC. The findings deepen understanding of potential intervention targets and mechanisms. These results can inform future psychosocial and psychoeducational approaches that assist, validate, and empower family caregivers during the transition to RLTC.

DOI10.1177/0898264320963588
Alternate JournalJ Aging Health
PubMed ID32990494
PubMed Central IDPMC7891851
Grant ListR01 AG048931 / AG / NIA NIH HHS / United States
R18 HS022836 / HS / AHRQ HHS / United States