Barriers and Solutions to Advance Care Planning among Homeless-Experienced Older Adults.

TitleBarriers and Solutions to Advance Care Planning among Homeless-Experienced Older Adults.
Publication TypeJournal Article
Year of Publication2020
AuthorsKaplan, LM, Sudore, RL, Cuervo, IArellano, Bainto, D, Olsen, P, Kushel, M
JournalJ Palliat Med
Volume23
Issue10
Pagination1300-1306
Date Published2020 Oct
ISSN1557-7740
KeywordsAdvance Care Planning, Aged, Cross-Sectional Studies, Focus Groups, Humans, Ill-Housed Persons
Abstract

Older homeless-experienced adults have low rates of advance care planning (ACP) engagement despite high rates of morbidity and mortality. To inform intervention development, we examined potential barriers and solutions to ACP engagement. Cross-sectional qualitative study. We recruited adults who were homeless in the prior three years and ≥50 years of age in the San Francisco Bay Area, and recruited clinical stakeholders from a national meeting of homeless providers. We analyzed qualitative data using thematic analysis. We conducted semistructured interviews with homeless-experienced older adults ( = 20) and focus groups with clinical stakeholders ( = 24) about perceived barriers and solutions to ACP engagement. Participants considered ACP important, reflecting on deaths of people in their networks who had died. Participant-identified barriers to ACP included poor ACP knowledge, lack of familial ties and social isolation, competing priorities, avoidance and lack of readiness, fatalism and mistrust, and lack of ACP training for clinical and nonclinical staff. They identified solutions that included framing ACP as a way to provide meaning and assert choice, providing easy-to-read written documents focused on the populations' unique needs, tailoring content and delivery, initiating ACP in nonclinical settings, such as permanent supportive housing, and providing incentives. Both older homeless-experienced adults and clinical stakeholders believe that ACP is important, but acknowledge multiple barriers that impede engagement. By focusing on potential solutions, including capitalizing on opportunities outside of health care settings, focusing on the period after housing, and tailoring content, there are opportunities to improve ACP uptake.

DOI10.1089/jpm.2019.0550
Alternate JournalJ Palliat Med
PubMed ID32182155
PubMed Central IDPMC7523016
Grant ListR01 AG041860 / AG / NIA NIH HHS / United States
T35 AG026736 / AG / NIA NIH HHS / United States
P30 AG044281 / AG / NIA NIH HHS / United States
K24 AG054415 / AG / NIA NIH HHS / United States
K24 AG046372 / AG / NIA NIH HHS / United States