Promoting Caregiver Mastery in Black American Dementia Caregivers.

TitlePromoting Caregiver Mastery in Black American Dementia Caregivers.
Publication TypeJournal Article
Year of Publication2022
AuthorsJohnson, KBonds, Brewster, GS, Cicero, E, Hepburn, K, Clevenger, CK, Daniel, G, Pak, V, Paul, S, Epps, F
JournalGerontologist
Volume62
Issue5
Pagination685-693
Date Published2022 May 26
ISSN1758-5341
KeywordsAdaptation, Psychological, Aged, Alzheimer Disease, Black or African American, Caregivers, Ecosystem, Humans
Abstract

Over 6 million older Americans live with Alzheimer's disease and related dementias; Black American older adults' prevalence is more than twice that of non-Hispanic White older adults. The Black American dementia caregiving experience can be encapsulated within the Black Family Socioecological Context Model, which provides a conceptual basis for examining social determinants of health at individual, family, community, and societal levels with careful consideration for how the intersection of race, gender, and class of Black American dementia caregivers influences the multiple dimensions of their caregiving experiences. Family dynamics, community setting, and health care systems have a potentially bidirectional influence on these caregivers, which is shaped by historical and ongoing systemic and institutional racism and general disenfranchisement. This Forum article outlines how the Social Cognitive Theory offers ways for Black American dementia caregivers to achieve a sense of mastery within the complicated and fraught ecology within which their caregiving occurs. We propose a research agenda to create programs and interventions for enhancing a sense of mastery among Black American dementia caregivers. Two concepts in particular, "constraints" and "efficacy expectations," provide ways to create a systematic approach to developing successful coping strategies for the constraints perceived by individuals as they undertake and function in the caregiving role. The recognition of the complexity of the caregiving ecosystem and intersectionality of caregivers' experience and identity emphasize the importance of individualization: Each caregiver's experience of this ecosystem-and therefore each Black American dementia caregiver's way to mastery within it-will be uniquely shaped and experienced.

DOI10.1093/geront/gnab147
Alternate JournalGerontologist
PubMed ID34610111
PubMed Central IDPMC9154278
Grant ListT32NR012715 / NR / NINR NIH HHS / United States
K23 AG065452 / AG / NIA NIH HHS / United States
T32 NR012715 / NR / NINR NIH HHS / United States
K23 AG070378 / AG / NIA NIH HHS / United States
R01AG054079 / AG / NIA NIH HHS / United States
T32ES012870 / ES / NIEHS NIH HHS / United States