In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice).

TitleIn Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice).
Publication TypeJournal Article
Year of Publication2021
AuthorsM Guest, A, Smith, MP
JournalDementia (London)
Volume20
Issue1
Pagination391-397
Date Published2021 Jan
ISSN1741-2684
KeywordsAlzheimer Disease, Black or African American, Caregivers, Dementia, Humans, Patient-Centered Care
Abstract

African-Americans face higher rates of Alzheimer's disease and other related dementias than any other group. With cases of Alzheimer's disease and other related dementias expected to double by 2050 the African-American community stands to be disproportionally affected. Recognizing the need for culturally tailored programming for caregivers and those living with Alzheimer's disease and other related dementias In Our Community, Dementia Speaks was developed through a community-participatory model of engagement. While pilot results showed a non-statistically significant increase in pre/posttest knowledge a more nuanced review of the data indicates success in changing attitudes and behaviors regarding the disease among caregivers. Results provide a guide for informing future interventions and improving existing programming.

DOI10.1177/1471301219885784
Alternate JournalDementia (London)
PubMed ID31684764