Dementia Specialty Care Clinicians' Perspectives on Their Role in the Dementia Diagnostic Process and Diagnostic Disclosure.

TitleDementia Specialty Care Clinicians' Perspectives on Their Role in the Dementia Diagnostic Process and Diagnostic Disclosure.
Publication TypeJournal Article
Year of Publication2025
AuthorsSideman, AB, Harrison, KL, Garrett, SB, Paladino, J, Naasan, G, Ritchie, CS
JournalJ Geriatr Psychiatry Neurol
Volume38
Issue1
Pagination3-12
Date Published2025 Jan
ISSN0891-9887
KeywordsAdult, Alzheimer Disease, Attitude of Health Personnel, Dementia, Disclosure, Female, Humans, Male, Middle Aged, Neurologists, Patient Care Team, Qualitative Research, Social Workers
Abstract

BACKGROUND: Delivering a diagnosis of Alzheimer's disease and related dementias (ADRD) can be challenging not just for patients and families, but also for clinicians. Our objective was to understand dementia specialty care clinicians' perspectives on their role in diagnosis and diagnostic disclosure in dementia.

METHODS: Qualitative interviews with clinicians from a specialty tertiary dementia care center focused on practices, challenges, and opportunities addressing patient and caregiver needs in dementia. Data was analyzed by an interdisciplinary team using thematic analysis.

RESULTS: The 16 participants included behavioral neurologists, social workers, neuropsychologists, and nurses. Themes included the value of providing an accurate diagnosis, the timing and challenges of delivering a diagnosis, the central focus on diagnosis alongside the need for more education on care management, and the role of the interdisciplinary team.

DISCUSSION: We identified areas for improvement and strengths that can be built upon or adapted to other settings, including providing clinicians in specialty and primary care settings more guidance and support when diagnostic challenges arise, strengthening interdisciplinary teamwork, and making dementia diagnosis and care more accessible.

DOI10.1177/08919887241254468
Alternate JournalJ Geriatr Psychiatry Neurol
PubMed ID39046920
Grant ListK01 AG059840 / AG / NIA NIH HHS / United States